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  3. What happens to your data if 23andMe collapses?

What happens to your data if 23andMe collapses?

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  • D [email protected]

    the Supreme Court of the United States ruled in the Association for Molecular Pathology v. Myriad Genetics, Inc, that human genes cannot be patented because DNA is a “product of nature.” All gene patents were invalidated with this ruling.

    D This user is from outside of this forum
    D This user is from outside of this forum
    [email protected]
    wrote on last edited by
    #33

    OK if nobody's going to bother reading beyond that I give up. Be ignorant.

    T 1 Reply Last reply
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    • T [email protected]

      Shit, they're gonna want my DNA. I'm 1/8th Cherokee and I'm descended from Napoleon, Julius Caesar, Christopher Columbus, Abraham Lincoln, every signatory of the magna carta, Jesus, and the Mayflower. The actual ship. Don't ask.

      O This user is from outside of this forum
      O This user is from outside of this forum
      [email protected]
      wrote on last edited by
      #34

      I’m pretty sure you’re main character in an Assassin’s Creed game.

      ? 1 Reply Last reply
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      • D [email protected]

        OK if nobody's going to bother reading beyond that I give up. Be ignorant.

        T This user is from outside of this forum
        T This user is from outside of this forum
        [email protected]
        wrote on last edited by
        #35

        Maybe you can cite the exact statement we’re all missing. You can’t because the trouble you’re running into is that we did read it, and it seems perhaps you did not, but you can’t try. Summary: can’t patent unmanipulated genes. Can patent manipulated genes and sequencing processes.

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        • tea@programming.devT [email protected]
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          H This user is from outside of this forum
          H This user is from outside of this forum
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          wrote on last edited by
          #36

          You guys know that you share half your genome with your kids and parents, so it's not even just the users' data, but also people who might not even know about this.

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          • tea@programming.devT [email protected]
            This post did not contain any content.
            B This user is from outside of this forum
            B This user is from outside of this forum
            [email protected]
            wrote on last edited by
            #37

            I just passed by the settings page and requested all my data.
            When I receive it, I will delete the account which, according to their full privacy statement, requires them to discard my sample, delete my data AND opt me out of 23andMe Research.

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            • O [email protected]

              I’m pretty sure you’re main character in an Assassin’s Creed game.

              ? Offline
              ? Offline
              Guest
              wrote on last edited by
              #38

              You can't just go around accusing people of being mass murderers.

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              • tea@programming.devT [email protected]
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                G This user is from outside of this forum
                G This user is from outside of this forum
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                wrote on last edited by
                #39

                When the ACA gets repealed insurance comoanies can use it to preemptively deny you coverage. Then there's the ethnic cleansing of course. There will be religious people who will use it for marriage licenses or breeding permits.

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                • tea@programming.devT [email protected]
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                  S This user is from outside of this forum
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                  wrote on last edited by
                  #40

                  I believe you and your genome become property of whomever buys the data and you'll have to go over to their house and rake their leaves for them and stuff

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                  • tea@programming.devT [email protected]
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                    wrote on last edited by
                    #41

                    https://www.404media.co/dna-of-15-million-people-for-sale-in-23andme-bankruptcy/

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                    • tea@programming.devT [email protected]
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                      I This user is from outside of this forum
                      I This user is from outside of this forum
                      [email protected]
                      wrote on last edited by
                      #42

                      Same thing that happens with NCIX's personal information data, it probably goes to the highest bidder.

                      anunusualrelic@lemmy.worldA 1 Reply Last reply
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                      • tea@programming.devT [email protected]
                        This post did not contain any content.
                        H This user is from outside of this forum
                        H This user is from outside of this forum
                        [email protected]
                        wrote on last edited by
                        #43

                        you should definitely request your data to be deleted before it's too late

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                        • I [email protected]

                          Same thing that happens with NCIX's personal information data, it probably goes to the highest bidder.

                          anunusualrelic@lemmy.worldA This user is from outside of this forum
                          anunusualrelic@lemmy.worldA This user is from outside of this forum
                          [email protected]
                          wrote on last edited by
                          #44

                          Isn't that what already happened to it before?

                          I 1 Reply Last reply
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                          • tea@programming.devT [email protected]
                            This post did not contain any content.
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                            [email protected]
                            wrote on last edited by
                            #45

                            I did this over a year ago, requesting that they delete my shit.

                            I got a nice email back saying that they would do so, but would retain necessary material to comply with local laws and law enforcement obligations.

                            So, my best bet is they didn't delete anything. I only hope is that they don't put it on the open market.

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                            • S [email protected]

                              For those too lazy to click through:

                              However, on June 13, 2013, the Supreme Court of the United States ruled in the Association for Molecular Pathology v. Myriad Genetics, Inc, that human genes cannot be patented because DNA is a “product of nature.” All gene patents were invalidated with this ruling. However, the ruling did not prohibit the patenting of DNA that is manipulated (i.e., no longer a product of nature) or processes for identifying DNA sequences.

                              S This user is from outside of this forum
                              S This user is from outside of this forum
                              [email protected]
                              wrote on last edited by
                              #46

                              So if a lab rat adds, deletes or edits a person's DNA it is no longer a 'product of nature'?

                              S 1 Reply Last reply
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                              • anunusualrelic@lemmy.worldA [email protected]

                                Isn't that what already happened to it before?

                                I This user is from outside of this forum
                                I This user is from outside of this forum
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                                wrote on last edited by
                                #47

                                Yes, correct, I made a typo. I fixed it now.

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                                • tea@programming.devT [email protected]
                                  This post did not contain any content.
                                  T This user is from outside of this forum
                                  T This user is from outside of this forum
                                  [email protected]
                                  wrote on last edited by
                                  #48

                                  Never did the stupid test.

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                                  • S [email protected]

                                    So if a lab rat adds, deletes or edits a person's DNA it is no longer a 'product of nature'?

                                    S This user is from outside of this forum
                                    S This user is from outside of this forum
                                    [email protected]
                                    wrote on last edited by
                                    #49

                                    Apparently.

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