Just an FYI, MyChart is a branded property of Epic Systems Corp, a private company based out of Wisconsin.
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They kept many people in that hospital until they died, including many people who came in psychotic and stopped being psychotic a month or two later, and I also believed during my forced stay I would die there. I only got out through subterfuge. I keep my address a secret because of that hospital, I am afraid to get medical care because of that hospital. I do not think it would be smart to talk with them directly. I hate them, I also am not sure I could contain my rage at them for all the horrible ways they treated me and others if I were to interact with them verbally. They also lie often and I wouldn't be willing to talk with them unless it was on a recorded line.
That information was shared by EPIC without my authorization. I shouldn't have to interact with a facility that was emotionally abusive, forcing me to share trauma in group therapy with prejudiced people I hated and with rotating clinicians on threat of death, just to remove information that I never allowed.
I also was forced to sign many things during my stay under threat of death, because they moved the non-compliant patients to the violent area of the facility in which they kept the habitually violent patients. So they didn't directly physically abuse patients, they just sent the patients who didn't do what they said to areas of the facility where they would be very likely to be abused by unstable violent patients. Many patients in these areas were assaulted, killings weren't often but they happened enough that I felt like many things I either had to sign or risk death. I don't think I signed off on MyChart, however. They did once treat something outside the facility and made me sign forms. Even if that's the case, I never allowed MyChart to share that information indefinitely with any doctor looking it up in their system. It was the sort of thing where if you even tried to slow down to read it they would accuse you of being "manipulative" and increase the amount of tranquilizers you were forced to take (lest you wish to be moved to the violent areas of the facility).
I would rather file a federal complaint against Epic Systems for the Office of Civil Rights, since I don't believe they ever got my explicit authorization and they are the ones sharing information, which I absolutely did not consent to. It just is awful because I worry about the awful facility being looped in and trying to ensnare me again. I also did contact Epic Systems by email but did not receive any reply.
It's terribly reductive, but I would prefer anything rather than getting ensnared by the mental health system again. I'll probably just forgo medical care and if these problems keep causing me pain, I'll just find a heroin dealer, get heroin, check out. It's too risky to interact with doctors if I could be forced back into the mental health system; for me death is a preferable option, and any medical care I get that will link me to that facility could result in involuntary care. They diagnosed me with so many things, they are all DSM "they never go away and you have to keep paying doctors forever" diagnosis, it's just such a high risk of getting ensnared. I'll just deal with the pain until I can't anymore, then peace out.
I suspect that they "technically" did get your consent to share information. It was likely one of the first forms they had you sign. Probably before you discovered how terrible they were. Then, when you went to see the doctor, they had you sign the same form on your first appointment, and then everybody knows everything.
I'm not saying it's right, and I really do feel for you, but I've signed a lot of those forms over the years.
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I suspect that they "technically" did get your consent to share information. It was likely one of the first forms they had you sign. Probably before you discovered how terrible they were. Then, when you went to see the doctor, they had you sign the same form on your first appointment, and then everybody knows everything.
I'm not saying it's right, and I really do feel for you, but I've signed a lot of those forms over the years.
wrote on last edited by [email protected]I never signed any of the forms when I was initially involuntarily admitted. They said I was required to sign some forms and I refused because I thought they could have some sort of legal impact and I didn't have a lawyer with me. Some of them were things about charging me fees.
They told me I had to, and that the forms didn't change anything, and I still refused to sign. I am very reluctant to sign anything ever, especially under pressure. I absolutely didn't sign anything right away.
These doctors offices had prior mychart addresses when setting up a new patient account for me. They were like "Did you ever live at 123 Psychiatric Facility St in Horrible City, State?" and I was like "How the f&ck do you know that?" since I had not give that address to anyone and CERTAINLY did not consent for MyChart to allow that information to be shared with a possible new treatment provider before I even had an appointment.
I have not voluntary seen any doctors after involuntary treatment stopped.
I absolutely did not sign forms when I entered. It was only after I felt the threat of death that I occasionally signed things, and I did not sign anything saying they could release my information to something called MyChart.
They also did not use electronic records when I was there, although that's likely changed now.
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There is no link like that. I also do not want this place to have ANY current information on me. If you escaped the clutches of a bear attack, you don't go back and poke the bear with a stick... or poke the IT guy working for the bear. No way, I will not interact with that place or any psychiatric/psychological mental health agency or person connected to that field ever again after how I was treated.
In that instance I suggest you email [email protected] and ask them if there is a way for you to opt out of care everywhere through them directly.
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I never signed any of the forms when I was initially involuntarily admitted. They said I was required to sign some forms and I refused because I thought they could have some sort of legal impact and I didn't have a lawyer with me. Some of them were things about charging me fees.
They told me I had to, and that the forms didn't change anything, and I still refused to sign. I am very reluctant to sign anything ever, especially under pressure. I absolutely didn't sign anything right away.
These doctors offices had prior mychart addresses when setting up a new patient account for me. They were like "Did you ever live at 123 Psychiatric Facility St in Horrible City, State?" and I was like "How the f&ck do you know that?" since I had not give that address to anyone and CERTAINLY did not consent for MyChart to allow that information to be shared with a possible new treatment provider before I even had an appointment.
I have not voluntary seen any doctors after involuntary treatment stopped.
I absolutely did not sign forms when I entered. It was only after I felt the threat of death that I occasionally signed things, and I did not sign anything saying they could release my information to something called MyChart.
They also did not use electronic records when I was there, although that's likely changed now.
wrote on last edited by [email protected]I absolutely did not sign forms when I entered. It was only after I felt the threat of death that I occasionally signed things, and I did not sign anything saying they could release my information to something called MyChart.
Sounds like a lawyer is in order then, as one of those forms may have given them the go ahead. Nobody but those present would necessarily know that you were signing under duress.
And MyChart is simply branding of your electronic medical record. I am not aware of any limitation on converting paper charts into EMR data either. It’s all HIPAA compliant and only those treating you are able to see this data. People lose their jobs regularly for improper EMR access.
And FWIW, I don’t think it’s especially cool to go at someone who seems to be honestly sharing their advice.
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In that instance I suggest you email [email protected] and ask them if there is a way for you to opt out of care everywhere through them directly.
wrote on last edited by [email protected]I am trying to do that, but they haven't responded. I already emailed them, including emailing them a copy of the complaint I am sending the Office for Civil Rights (OCR). Ideally, I could do this without actually filing a federal complaint, because with the current political environment it's very uncertain how that information will be used. But if they don't respond, and it's Monday morning, I'm sending the complaint in, and then they can deal with OCR instead of me.
I suspect they will say they are required to keep health care information and aren't allowed to delete it, leaving OCR as my only recourse.
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I absolutely did not sign forms when I entered. It was only after I felt the threat of death that I occasionally signed things, and I did not sign anything saying they could release my information to something called MyChart.
Sounds like a lawyer is in order then, as one of those forms may have given them the go ahead. Nobody but those present would necessarily know that you were signing under duress.
And MyChart is simply branding of your electronic medical record. I am not aware of any limitation on converting paper charts into EMR data either. It’s all HIPAA compliant and only those treating you are able to see this data. People lose their jobs regularly for improper EMR access.
And FWIW, I don’t think it’s especially cool to go at someone who seems to be honestly sharing their advice.
wrote on last edited by [email protected]And FWIW, I don’t think it’s especially cool to go at someone who seems to be honestly sharing their advice.
It felt like gaslighting to me. Like, "Oh, well, you must be a moron and this nice hospital is right and you're just too simple to understand the forms." It sort of felt like the same logic I often got at that awful place, he has a rhinoplasty name, which likely means he's a doctor.
I don't really think it's dishonest to call doctors vultures; they financially exploit people in vulnerable positions for exorbitant fees while the AMA makes it hard for the many people who want to become doctors to practice by limiting medical school entrances and also not allowing tiers of medical specialists to alleviate costs. Pharmacists could easily prescribe certain medications. I think doctors are often very polite vultures, but vultures none the same. They do things to limit competition when there is an extremely inelastic need for some of their services; it's the definition of corrupt.
But I suppose he may not be a doctor, so in that sense you're right, I shouldn't have accused him of being one, but this didn't feel like advice to me, but more likely a defense of other doctors and hospital workers.
I could be totally wrong however. Maybe she's a professional golfer, randomly had a rhinoplasty, and was just offering an opinion.
Upon further reflection, you may be right: this is a very anger-inducing topic for me, but it's not like he was the one who treated me poorly there or killed the woman i met there due to neglect, or lead to the beatings and killings that took place there. I'll edit the post.
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I absolutely did not sign forms when I entered. It was only after I felt the threat of death that I occasionally signed things, and I did not sign anything saying they could release my information to something called MyChart.
Sounds like a lawyer is in order then, as one of those forms may have given them the go ahead. Nobody but those present would necessarily know that you were signing under duress.
And MyChart is simply branding of your electronic medical record. I am not aware of any limitation on converting paper charts into EMR data either. It’s all HIPAA compliant and only those treating you are able to see this data. People lose their jobs regularly for improper EMR access.
And FWIW, I don’t think it’s especially cool to go at someone who seems to be honestly sharing their advice.
wrote on last edited by [email protected]I don't think a lawyer would say anything other than file a complaint with the OCR. It seems unlikely I could sue for damages. I could at best sue for emotional distress, if HIPPA violations allow for that and they probably don't, and to do that I would need to prove emotion, which a court would say requires a mental health expert. Pass.
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Just an FYI, MyChart is a branded property of Epic Systems Corp, a private company based out of Wisconsin. I think you should absolutely have control over your own medical records, but as far as I know, the aspect of MyChart and Epic’s electronic medical records system that allows cross hospital sharing, called Care Everywhere was built to comply with HIPAA.
That doesn’t leave you without any recourse though. I believe you are able to opt out of Care Everywhere. Here’s an example of a random hospital’s information page that describes how you can opt out of their sharing their EMR data outside their organization. The problem here is as far as I know, you would need to work with the old psych hospital that you had such a terrible experience with. I’d try barking up that tree first and seeing if they’ll work with you. From there you might be able to reach out to epic directly to see if they can help.
Good luck, and feel free to ask me anything more. I’m pretty familiar with the general topic
I'll write EPIC to see if I can opt out of Care Everwhere. Perhaps that is the best solution.
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I suspect that they "technically" did get your consent to share information. It was likely one of the first forms they had you sign. Probably before you discovered how terrible they were. Then, when you went to see the doctor, they had you sign the same form on your first appointment, and then everybody knows everything.
I'm not saying it's right, and I really do feel for you, but I've signed a lot of those forms over the years.
thanks for replying, this is an upsetting topic for me and it's probably not you, it's just me after everything
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And FWIW, I don’t think it’s especially cool to go at someone who seems to be honestly sharing their advice.
It felt like gaslighting to me. Like, "Oh, well, you must be a moron and this nice hospital is right and you're just too simple to understand the forms." It sort of felt like the same logic I often got at that awful place, he has a rhinoplasty name, which likely means he's a doctor.
I don't really think it's dishonest to call doctors vultures; they financially exploit people in vulnerable positions for exorbitant fees while the AMA makes it hard for the many people who want to become doctors to practice by limiting medical school entrances and also not allowing tiers of medical specialists to alleviate costs. Pharmacists could easily prescribe certain medications. I think doctors are often very polite vultures, but vultures none the same. They do things to limit competition when there is an extremely inelastic need for some of their services; it's the definition of corrupt.
But I suppose he may not be a doctor, so in that sense you're right, I shouldn't have accused him of being one, but this didn't feel like advice to me, but more likely a defense of other doctors and hospital workers.
I could be totally wrong however. Maybe she's a professional golfer, randomly had a rhinoplasty, and was just offering an opinion.
Upon further reflection, you may be right: this is a very anger-inducing topic for me, but it's not like he was the one who treated me poorly there or killed the woman i met there due to neglect, or lead to the beatings and killings that took place there. I'll edit the post.
wrote on last edited by [email protected]I wish I was a doctor, and I know for a fact I could never pro at golf!
No hard feelings. It's easy to hear the wrong tone in text. No, I'm definitely on your side 100%, I was just pointing out that you unfortunately probably wouldn't have legal standing. I could be wrong, I have no idea what you signed, but I know I fill one out every time I take a kid to a doctor's appointment, and these are doctors they've been seeing for years.
You could possibly argue that they were signed under duress, but only a lawyer with all the details would know for sure. Either way, best of luck to you!
