If you were born with a disease that made you blind, complete loss of hearing by 20, have seizures, require a feeding tube, colostomy bag, wheelchair and have sleep apnea. Would you want to live?
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Part 2: if you were the parent, would you feel it would be ethical to keep them alive?
as a person, I wouldn't know any other way. I would find something to live for. wouldn't be easy.
as a parent, I would listen to their wish and try to help them make it as painless as possible if that's what they wanted.
not to be confused with the pain of life, it's my job as a parent to shield my children from the pain of death as best as I can. even if it costs me my own life.
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I have none of that, and still don't want to live.
DNR @30 bay-BEE