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  3. DNA of 15 Million People for Sale in 23andMe Bankruptcy

DNA of 15 Million People for Sale in 23andMe Bankruptcy

Scheduled Pinned Locked Moved Privacy
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  • T [email protected]

    Same reason I don’t want to buy a new car anymore…

    Because of the "driving behavior" data that gets sent out via secret cell connections and bought by insurance companies?

    O This user is from outside of this forum
    O This user is from outside of this forum
    [email protected]
    wrote on last edited by
    #9

    What! What cars have this???

    T F 2 Replies Last reply
    0
    • inlandempire@jlai.luI [email protected]
      This post did not contain any content.
      K This user is from outside of this forum
      K This user is from outside of this forum
      [email protected]
      wrote on last edited by
      #10

      This is the perfect example of why privacy matters. No matter how much you trust a parent company one day when the investors come knocking they are legally obligated to liquidate all assets to the highest bidder. Today its 23andme tomorrow it could be discord, google, amazon, Facebook or any other tech company.

      S 1 Reply Last reply
      0
      • O [email protected]

        What! What cars have this???

        T This user is from outside of this forum
        T This user is from outside of this forum
        [email protected]
        wrote on last edited by
        #11

        Yes, unfortunately. I dunno if it's a global thing or just in the US, but several years ago, they started sending your car's computer data to insurance companies, who then use it to determine how well you drive and what insurance rates they want to give you.

        It's really scummy.

        A F 2 Replies Last reply
        0
        • inlandempire@jlai.luI [email protected]
          This post did not contain any content.
          S This user is from outside of this forum
          S This user is from outside of this forum
          [email protected]
          wrote on last edited by
          #12

          I knew the whole idea of letting a company get your genetic fingerprint was a bad idea from the start. Being curious about my ancestry wasn't worth it.

          I F I 3 Replies Last reply
          0
          • inlandempire@jlai.luI [email protected]
            This post did not contain any content.
            S This user is from outside of this forum
            S This user is from outside of this forum
            [email protected]
            wrote on last edited by
            #13

            How to remove your data from 23andMe

            menemen@lemmy.mlM ? 2 Replies Last reply
            0
            • K [email protected]

              This is the perfect example of why privacy matters. No matter how much you trust a parent company one day when the investors come knocking they are legally obligated to liquidate all assets to the highest bidder. Today its 23andme tomorrow it could be discord, google, amazon, Facebook or any other tech company.

              S This user is from outside of this forum
              S This user is from outside of this forum
              [email protected]
              wrote on last edited by
              #14

              hackers obtained personal data about seven million of its customers in October 202

              1 Reply Last reply
              0
              • S [email protected]

                How to remove your data from 23andMe

                menemen@lemmy.mlM This user is from outside of this forum
                menemen@lemmy.mlM This user is from outside of this forum
                [email protected]
                wrote on last edited by
                #15

                Hmm.

                One of the notable issues is that this process also won’t delete all of your data — according to 23andMe’s privacy disclosure, your genetic information, date of birth, and sex will be retained for an undisclosed amount of time to comply with the company’s legal obligations,

                B 1 Reply Last reply
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                • S [email protected]

                  I knew the whole idea of letting a company get your genetic fingerprint was a bad idea from the start. Being curious about my ancestry wasn't worth it.

                  I This user is from outside of this forum
                  I This user is from outside of this forum
                  [email protected]
                  wrote on last edited by
                  #16

                  That’s great but all it takes is some of your blood relatives to submit their genetic data and they can calculate your genetics.

                  J F 2 Replies Last reply
                  0
                  • I [email protected]

                    That’s great but all it takes is some of your blood relatives to submit their genetic data and they can calculate your genetics.

                    J This user is from outside of this forum
                    J This user is from outside of this forum
                    [email protected]
                    wrote on last edited by
                    #17

                    So... Orgies for privacy? 😄

                    1 Reply Last reply
                    0
                    • menemen@lemmy.mlM [email protected]

                      Hmm.

                      One of the notable issues is that this process also won’t delete all of your data — according to 23andMe’s privacy disclosure, your genetic information, date of birth, and sex will be retained for an undisclosed amount of time to comply with the company’s legal obligations,

                      B This user is from outside of this forum
                      B This user is from outside of this forum
                      [email protected]
                      wrote on last edited by
                      #18

                      A merger or liquidation is not a valid purpose to store personal, and especially Art. 9, data, as covered by the legal basis of legal obligations, according to GDPR.
                      So, if you are in Europe, they would have to delete it.

                      F 1 Reply Last reply
                      0
                      • inlandempire@jlai.luI [email protected]
                        This post did not contain any content.
                        S This user is from outside of this forum
                        S This user is from outside of this forum
                        [email protected]
                        wrote on last edited by
                        #19

                        What a pile of fuck, not a decent person at that company to deep-six the data before they left

                        F 1 Reply Last reply
                        0
                        • T [email protected]

                          Same reason I don’t want to buy a new car anymore…

                          Because of the "driving behavior" data that gets sent out via secret cell connections and bought by insurance companies?

                          A This user is from outside of this forum
                          A This user is from outside of this forum
                          [email protected]
                          wrote on last edited by
                          #20

                          Just disconnect the modem problem solved.

                          F 1 Reply Last reply
                          0
                          • T [email protected]

                            Yes, unfortunately. I dunno if it's a global thing or just in the US, but several years ago, they started sending your car's computer data to insurance companies, who then use it to determine how well you drive and what insurance rates they want to give you.

                            It's really scummy.

                            A This user is from outside of this forum
                            A This user is from outside of this forum
                            [email protected]
                            wrote on last edited by
                            #21

                            All cars for awhile. Mozilla released a privacy report a year or two ago and it seems nobody cared. Which is why they can do this stuff.

                            1 Reply Last reply
                            0
                            • K [email protected]

                              Yup. Go ahead and try turning that cell phone radio thing off. Why do you need an app for remote start? Why can’t it be on the keyfob anymore? But again, nothing to see here - just the continued enshittification of everything.

                              A This user is from outside of this forum
                              A This user is from outside of this forum
                              [email protected]
                              wrote on last edited by
                              #22

                              I just pulled the fuse. Problem solved. Phone start doesn't work but never used it.

                              F 1 Reply Last reply
                              0
                              • M [email protected]

                                Find me a car produced in 2024 or later which does this

                                P This user is from outside of this forum
                                P This user is from outside of this forum
                                [email protected]
                                wrote on last edited by
                                #23

                                2024 Suzuki Swift.

                                You even need to dial in the date and time manually because there's no GPS either.

                                https://www.manualslib.com/manual/3476295/Suzuki-Swift-2024.html?page=548#manual

                                1 Reply Last reply
                                0
                                • S [email protected]

                                  What a pile of fuck, not a decent person at that company to deep-six the data before they left

                                  F This user is from outside of this forum
                                  F This user is from outside of this forum
                                  [email protected]
                                  wrote on last edited by
                                  #24

                                  Why would anyone expect anyone to risk getting sued or risk going to jail for that? Fully get want you are saying, though.

                                  The smart thing was to never trust some random upstart company with a cutsie name with the code of our literal DNA. Caveat emptor and all that.

                                  So much wrong can be done if it ends up in the wrong hands in any of a multitude of sectors, from military contractors to insurance companies who could literally up premiums based on DNA profiles and propensity for illnesses. And that latter one would be one of the most docile of outcomes.

                                  1 Reply Last reply
                                  0
                                  • I [email protected]

                                    That’s great but all it takes is some of your blood relatives to submit their genetic data and they can calculate your genetics.

                                    F This user is from outside of this forum
                                    F This user is from outside of this forum
                                    [email protected]
                                    wrote on last edited by
                                    #25

                                    Luckily for us, all family members either saw what OP saw ahead of time, or the few that were curious listened to others and didn't go through with it. Exactly because of the reason that you stated.

                                    1 Reply Last reply
                                    0
                                    • S [email protected]

                                      I knew the whole idea of letting a company get your genetic fingerprint was a bad idea from the start. Being curious about my ancestry wasn't worth it.

                                      F This user is from outside of this forum
                                      F This user is from outside of this forum
                                      [email protected]
                                      wrote on last edited by
                                      #26

                                      Yeah, I feel like I dodged a bullet. As I knew some family members who tjpigbt about it but declined to do it because of the for-profit angle in case the company flopped.

                                      1 Reply Last reply
                                      0
                                      • S [email protected]

                                        How to remove your data from 23andMe

                                        ? Offline
                                        ? Offline
                                        Guest
                                        wrote on last edited by
                                        #27

                                        How to remove your data from 23andMe

                                        I wish I could. I have been trying to get my account back for months.

                                        1 Reply Last reply
                                        0
                                        • B [email protected]

                                          A merger or liquidation is not a valid purpose to store personal, and especially Art. 9, data, as covered by the legal basis of legal obligations, according to GDPR.
                                          So, if you are in Europe, they would have to delete it.

                                          F This user is from outside of this forum
                                          F This user is from outside of this forum
                                          [email protected]
                                          wrote on last edited by
                                          #28

                                          Uh... nope. Sorry. They specifically touch on it"

                                          "Commonly owned entities, affiliates and change of ownership: If we are involved in a bankruptcy, merger, acquisition, reorganization, or sale of assets, your Personal Information may be accessed, sold or transferred as part of that transaction and this Privacy Statement will apply to your Personal Information as transferred to the new entity. We may also disclose Personal Information about you to our corporate affiliates to help operate our services and our affiliates’ services."

                                          If you request to delete your data as per the GDPR, they will delete some data, but as per their legalese they will not delete all and what is not deleted falls under their Privacy Statement, where you find the above, quoted text. Worth noting that in above the use of may in practice means "will".

                                          On top of that, once the data is out of the the EU, which they make a point to state numerous times, they rely on the DPF which focuses on how data is used or transfered to outside the EU. So, if a company is already signed to the DPF, then they can totally keep some of your data as well. Or if they transfer it using it the same framework. So the DPF does not help either. The GDPR focuses on common identifying information, off the cuff it does not seem to address the notion of how DNA can liyerally be used for exactly that, so, legally, as it stands the DNA data is out of scope of the GDPR. Or, at least that is what they seem to be claiming, indirectly.

                                          So yeah, you can delete some data, but with a bunch of asterisks followed by that statement. So, sadly, your argument is not fully correct.
                                          They will delete some identifying information. But they seemto keep the most important of the data.

                                          B 1 Reply Last reply
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