DNA of 15 Million People for Sale in 23andMe Bankruptcy
-
Kinda wacked out take. Onus shouldnt be on the individual
-
This post did not contain any content.
I'm going to buy it all and work on my super human...
-
While I do agree its a bit whack, I question if everything needs 100% safety to be legal?
If someone offers a dangerous thing and you sign a waiver, maybe motocross, if you get injured is it the owners fault? Why should an individual be free from onus?
-
No one has any right to complain, this possibility is clearly outlined in the t&c's every person agreed to.
Shouldn't have handed out your defining essence to a corporation.
"The fuck else were these people expecting" is also my visceral reaction whenever shit like that happens, but if I think about for a bit longer, I realize that it's not much different than saying "The fuck else were you expecting" to a rape victim who went alone into a dark alley. Sure, people are stupid for engaging with this obvious scam, but the bad guy is still the scammer, not the victims.
-
What I meant is that "this Privacy Statement will apply to your Personal Information as transferred to the new entity", so by itself the sale of assets is not a reason to exclude any data from anything stated there.
I am deleting my account as soon as I get transferred all the data, but what happens when I request the deletion is still valid whether or not they sold the assets.
Thanks for the link. We may be slightly speaking past each other. On one hand, the link you sent is of course, correct. I had read that before and is not that I did not believe that the GDPR would include it, more so on not fully trusting 23andMe to comply.
What you may be overlooking is that in the real world, possible buyers will have access to data as part of any Due Diligence terms, whether they purchase or not. In a perfect world it should not change things but in practice it can, or does. Apparently, that bit I quoted earlier was a very recent update to their T&Cs, as they are protecting themselves for any future lawsuits. Also, I just do not trust 23andMe to have your best interest at heart and to fully comply with privacy issues at the current time, either due to willful BS or mistake. It might just not be a priority. The whole thing could collapse tomorrow, but they are still full on taking people's money. Any promise of compliance are just words at this point. I have known enough large companies collapse to see this as no different. GDPR or not. On a privacy concern, is not as if they asked everyone who is blood related for any consent, either.
This was releseased not to long ago, so the USA Feds are not really confident, either:
ag.ny.gov/press-release/2025/attorney-general-james-urges-23andme-customers-contact-company-delete
But on paper, I agree that Europeans seem to have sturdier protections. Albeit Americans may have more legal options. Cheers and hope they fully delete your data without any BS.
-
"The fuck else were these people expecting" is also my visceral reaction whenever shit like that happens, but if I think about for a bit longer, I realize that it's not much different than saying "The fuck else were you expecting" to a rape victim who went alone into a dark alley. Sure, people are stupid for engaging with this obvious scam, but the bad guy is still the scammer, not the victims.
-
This post did not contain any content.
I hate this understatement so fucking much. No, those are just the people that directly gave their dna to 23 & me.
In reality, you only need to sample the genetic data for a small sample of the population to get the genetic information for the majority of the population. These people have relatives, and 23 & me hd their data too. They have most of ours.
-
No one has any right to complain, this possibility is clearly outlined in the t&c's every person agreed to.
Shouldn't have handed out your defining essence to a corporation.
What about those of us who are related to the people who took the test, and never consented to the t&c? They have our data, too.
-
This post did not contain any content.
Does whoever purchase the company's assets have full rights to the DNA data though? Wouldn't there be some kind of restriction for that kind of thing?
-
Thanks for the link. We may be slightly speaking past each other. On one hand, the link you sent is of course, correct. I had read that before and is not that I did not believe that the GDPR would include it, more so on not fully trusting 23andMe to comply.
What you may be overlooking is that in the real world, possible buyers will have access to data as part of any Due Diligence terms, whether they purchase or not. In a perfect world it should not change things but in practice it can, or does. Apparently, that bit I quoted earlier was a very recent update to their T&Cs, as they are protecting themselves for any future lawsuits. Also, I just do not trust 23andMe to have your best interest at heart and to fully comply with privacy issues at the current time, either due to willful BS or mistake. It might just not be a priority. The whole thing could collapse tomorrow, but they are still full on taking people's money. Any promise of compliance are just words at this point. I have known enough large companies collapse to see this as no different. GDPR or not. On a privacy concern, is not as if they asked everyone who is blood related for any consent, either.
This was releseased not to long ago, so the USA Feds are not really confident, either:
ag.ny.gov/press-release/2025/attorney-general-james-urges-23andme-customers-contact-company-delete
But on paper, I agree that Europeans seem to have sturdier protections. Albeit Americans may have more legal options. Cheers and hope they fully delete your data without any BS.
I take the (you may call it Stoic) decision not to think about what I cannot affect.
23andMe is not a good company, it is tied to Google etc. and they are sloppy with security.
I am not even trying to justify myself not taking my data away from there earlier, that is my fault, and I have been stupid and lazy.That said, their Privacy Statement is quite clear about what should happen and none of the exception listed there apply, also because genetic data is anyway Art. 9 data.
I will act at the best of my possibilities and not concern myself more than needed with how bad of an actor anyone may be in the US (it is a bit overwhelming as an exercise, especially nowadays).
-
What about those of us who are related to the people who took the test, and never consented to the t&c? They have our data, too.
-
I hate this understatement so fucking much. No, those are just the people that directly gave their dna to 23 & me.
In reality, you only need to sample the genetic data for a small sample of the population to get the genetic information for the majority of the population. These people have relatives, and 23 & me hd their data too. They have most of ours.
How many gigabytes of data is that?
-
No one has any right to complain, this possibility is clearly outlined in the t&c's every person agreed to.
Shouldn't have handed out your defining essence to a corporation.
Ok, either you let this slide, or I personnally strangle every living lawyers.
-
Not just yours, but your family 's DNA. You are not much different from your siblings and parents. I was pissed when my brother told me he did one of those stupid DNA tests.
You could have the exact opposite combination of if genes from your sibling...
-
No one has any right to complain, this possibility is clearly outlined in the t&c's every person agreed to.
Shouldn't have handed out your defining essence to a corporation.
I don't think it is reasonable to expect every individual to become a privacy / legal expert. I think people should have reasonable protections and assurances given to them without needing to study the details of everything they do on a case-by-case basis.
We have laws about what food can and cannot be sold - so that individuals don't have to personally test and monitor every product for safety. Privacy & data could be done like that too.
-
New Zealand understands this, you can sign away a companies liability to yourself. For adventure tourism stuff mostly. It's a good and fair way to do things I think.
Yea that's kinda what I was thinking. Digital safety should be up to the individual, big companies should be fined and held accountable to the data they collect.
Its why I'm on Lemmy, I host my own instance and thus I own the data. I've moved my email and cloud backups to instances I own as well. I understand I'm a bit privileged that I can do such things, but I plan on helping others setup their own needs online if I can.
Unfortunately we've been on autopilot just taking online products and folding them into our lives without much forethought to the outcomes. Didn't know democracy was at threat, but with hindsight it makes sense. Power is moving up the chain of command and could be lost to us labourers for the foreseeable future unless we take it back through our data.
-
This post did not contain any content.
You can remove the data yourself but you need to log in with biometrics. A retinal scan, a face recognition scan and a fingerprint. /s
-
I hate this understatement so fucking much. No, those are just the people that directly gave their dna to 23 & me.
In reality, you only need to sample the genetic data for a small sample of the population to get the genetic information for the majority of the population. These people have relatives, and 23 & me hd their data too. They have most of ours.
That's what pisses me off. I'd never give my data willing, but it's unwillingly given through any relatives that did do this.
-
I take the (you may call it Stoic) decision not to think about what I cannot affect.
23andMe is not a good company, it is tied to Google etc. and they are sloppy with security.
I am not even trying to justify myself not taking my data away from there earlier, that is my fault, and I have been stupid and lazy.That said, their Privacy Statement is quite clear about what should happen and none of the exception listed there apply, also because genetic data is anyway Art. 9 data.
I will act at the best of my possibilities and not concern myself more than needed with how bad of an actor anyone may be in the US (it is a bit overwhelming as an exercise, especially nowadays).
Fair take.
-
I don't think it is reasonable to expect every individual to become a privacy / legal expert. I think people should have reasonable protections and assurances given to them without needing to study the details of everything they do on a case-by-case basis.
We have laws about what food can and cannot be sold - so that individuals don't have to personally test and monitor every product for safety. Privacy & data could be done like that too.
I don't agree with that at all, if you don't or can't understand the terms of a contract, you sign at your own peril, expecting the government to step in everytime a person decides to excercise their stupidity is authoritarian and leads to a bloated, innefficient system. This thinking just makes contracts meaningless, it just means you can claim ignorance everytime you sign into a contract you don't like.
Regulating food is whole different game for a number of reasons, i dont think it's a reasonable comparison.
